Hello Fellow friends,
Well, I am home now but I had a wonderful time with my man and his lovely family. I learned so much about him and all of them. We did so much with and without his family. My man and went on dates and walks. It was really nice. I got him some shirts he liked and some collector books he wanted. He got me a Totoro purse and wallet and some lotion and body spray too. It is not about the things, to me, the gifts are special because they are from the one I love! As for the rest of the family, they have to wait for Christmas…
When we spent time with his family as well as doing outings and everyday tasks.. We didn’t go to the beach or Disneyland but we did go to Medieval Times! I hadn’t been there since I was thirteen for my friend’s birthday in Florida. Here are some of the pictures I took. I hope they don’t mind me sharing them.
One weekend we watched movies and games. I even exchanged birthday and Christmas gifts as well with him. One of the weekends we had an outdoor bbq, watched a movie on a projector and did some rock painting, played soccer and other outdoor games.
I really enjoyed the one on one time with his mom too. We had a nice heart to heart talks. She even gave me a very sweet heartfelt gift from Starbucks as a surprise one night! It is special for so many reasons. It has all the state specialty emblems, I collect cups, it was a surprise, it showed she cared and was thinking of me. I wish I could have done so much more for them! I wish I had got to know his dad more tho too.
I stayed for almost three weeks. When I had free time alone worked on writing my books in progress.
I can’t believe it is only a few days from Thanksgiving!! I look forward to coming back there often. It helps that the man I love has family in California. I totally felt at home with his family and in California. I was really nervous about staying with them but I think it went well. There was so much more I had wanted to do with them and for them. I miss them all so much. His family is my family as well. That’s how I feel in my heart. I never felt uncomfortable or out of place. I just wish I could bring them all back with me! It would sure make things easier for us all. California is one of the few states that I wouldn’t mind moving to. Though I am unable to take permanent residence there mainly because of my Medical specialists and health care requirements.
I can not believe I had to say goodbye. It really broke my heart. I cried so much. I keep telling myself it is not over tho and we will be together again soon. The most important thing is I have so many wonderful memories from this trip and all the trips I have been on this year. I can not express how much I appreciate everyone and everything. To me making memories and spending time with the ones you care about is more important than anything else. Remember to take time for your loved ones and friends as well! I feel so refreshed and drained at the same time.
Stay safe and God blesses you today and Always!!
╰ღ╮ Amy Jane Sandberg╰ღ╮
Thus far even tho all the traveling I have done has been for my family and myself. I am super excited to be here in California for me. The trip I had been planing for a very long time has finally happened. Thanks to the help of my sister, having me for the company! Being in California is like being in Florida. Only with no humidity and the presence of mountains.
The traffic isn’t to bad, but it is smoggy. Maybe away from the city, it won’t be so bad. I have to say we are again at another awesome hotel in Aanaheimnaheim. To bad, we won’t have time to go to Disney. My sister and I are really sore tho. She hurt her back and I hurt my knee. I can tell she is ready to go home but has had a lot of fun.
Here is images of the sunset and sunrise from our room.
Beautiful right! This is the smallest room we have stayed in the whole time of travel. But I am not complaining. Gain it is another nice hotel. This one has more of a home feel thought he entire place with a convenient novelty shop and cafe/coffee bar. I got a ton of postcards from every place we went to. It is something I have been doing since I was little. A great cheap souvenir I collect postcards as I travel for mailing and myself. Usually a landmark or something about the place or state I am in. Do you do something like that to? My baby sister collects spoons. I think I started that hobby when I as in hospitals. I would always and still do get something from the gift shop for me and my loved ones. Out of the two hobbies, I think collecting postcards is cheaper right?
The most awesome thing about being in CA is my man is here! I got to see him today. I was so nervous. Long-distance relationships are hard and we hand seen each other in a while. We go to his house I was so nervous I walked up to his door and walked away. But he saw me and opened the door before I walked away again. His family was there. If I didn’t mention he is American born Mexican. We did the meet and greets. Last time he came to my home and met my family. My sisters surprised us and came to visit. I love that he is close to his family like I am to mine.
We went to Rubble Castle
And then we went to the movies to see Maleficent 2 after exploring the area a bit and discussing what to do.
Overall the whole experience and day was better then I expected… I was worried he wouldn’t still find me attractive or pleasing. He held my hand the entire movie and every chance he could he hugged me. I couldn’t stop smiling if I had wanted to. My sister and him got along as well. Tho they had met before. I will see him again in a few days when I stay with him and his family!.😮
Keep me in your prayers?
Thanks! Love you all!
Stay safe and God blesses you today and Always!!😇
╰ღ╮ Amy Jane Sandberg╰ღ╮
How are you today? I am doing well. I am on my third leg of the trip. I left Arizona a few days ago. It was awesome! Our hotel was one of the best I have ever stayed at. It was huge, with a restaurant, a cafe, sports activities, several pools, gardens and in a fun area. I adored the whole place and I hope to go back one day! We also went to a cactus garden and went to a butterfly garden and an aquarium with some insects and reptiles. It was my first time seeing a rainbow chameleon and poison dart frogs in person! I Loved all of it. Just wish I could have got to the titanic museum too.
Exciting right! It is a bit nostalgic for me living out of a suitcase once again for the past two months. Just like I did when I first moved in 2011. As I have been doing so for almost two months with only a week and a half at home in-between. I have been making sure to work on some of my books during my downtime… I’ve been mainly switching between two main books. When I get stuck on one I work on the other. Apparently, I am not the only writer who does this. I see the challenge of re-writing what I lost as part of a character challenge for myself. I am very determined to get some books done as soon as I possibly can. 🤔 I was gonna participate in NaNo. Obviously, I can’t this year. Funny last NaNoWriMo I was traveling as well… Maybe next year I can join in NaNo. Here is the link if you are interested in participating, or curious about what it is. Good luck, break a pen! https://www.nanowrimo.org/
Why am I traveling you ask? Why not? I love to travel and enjoying time with people. Life keeps everyone very busy but is important to enjoy life. If you are lucky enough to get a chance to spend time with people, especially those you care about you shouldn’t pass that up. Most of the best Christmas movies are about busy people not taking time to enjoy life and time with their loved ones. The main Characters then remember what was most important to them. Then a Christmas miracle happens or Santa gets involved and things get better. If you were in a Christmas movie what would the storyline be? To answer the question seriously as to why am I traveling is mainly because I had the chance to help my sister😀 and to go on the trip I had planned for in July. 🥰 I want to make the most of life and not pass up any opportunities! I do not want to have regrets in my life.
I was planning on doing some live videos along the way, but honestly, I get shy on camera and stumble over my words. So like the picture says I write better then I talk. I am grateful that I have met some awesome people! I love how everyone is unique and awesome in their own way.😄 Along with having new experiencing and seeing new places as well! I met a pretty famous author without knowing it until now. That was pretty neat. As I say famous people are just normal people too.
This is where I enjoyed several days outside listing to birds and getting inspired.
Grackle birds make the most unique beautiful sounds. I really enjoyed spending my mornings and afternoons with them. We have black ones here but now one believed me. I will try and take a picture of one and post it later. They are my second favorite bird besides vultures.
Grackles are quite the efficient foragers, and will even steal food from less savvy birds. They are omnivores and will eat anything from bugs to minnows to different types of berries and seeds. Of course, these birds aren’t snobby at all and will snatch human food at a moment’s notice. Common Grackles are blackbirds that look like they’ve been slightly stretched. They’re taller and longer tailed than a typical blackbird, with a longer, more tapered bill and glossy-iridescent bodies. Grackles walk around lawns and fields on their long legs or gather in noisy groups high in trees, typically evergreens.
Stay safe and God blesses you today and Always!!
╰ღ╮ Amy Jane Sandberg╰ღ╮
Hello, new and old friends. For those of you who are new, I have was born with Truncus Arteriosus, a congenital heart defect. I was the third person in the world to have my whole heart rebuilt, I have had three open-heart surgeries, been in two comas, had four stokes one of which caused me to be brain dead when I was twelve.
Here’s a short book I wrote about my medical past, including being brain dead and in a coma. On sale until September 27th.
I’ve been doing great recently so I thought. Yet, I wasn’t. Things were falling back in to place but I was just sick and tired a lot. I started having what I thought were “new panic attacks”. I’ve had my fair share of varied panic attacks due to medical PTSD, they are also hereditary on my mother’s side. Theses “New Ones” tho, I had none of the usual symptoms other than my heart racing for a few mins to a couple hours. Usually, they only happened before bed and when I woke up. I had been dealing with “New Attacks” for almost a month. I had no pains and no stamina. I thought I was just out of shape, so I kept trying to be productive, but when mid-afternoon came around I was spent.
When I went to doctor for antibiotics July 16th 2019, I needed for a trip I was preparing for. I was having one of those “new attacks”. I met a medical student who started asking me a ton of questions while waiting for the doctor. They were not unusual questions for a med student to ask me. I told him all about my history and what was going on… (I was there anyways right. Just be honest and tell him I’m having a new panic attack.) He then asked me more random questions. I don’t remember them all. I told him what I told you above, he took my vitals then left the room to get my primary. Who in turn came in to immediately run an EKG- Electrocardiography -It’s a test that records the electrical activity of your heart through small electrode patches that a technician, nurse, or doctor attaches to the skin of your chest, arms, and legs. My doctor then disappeared with the results and came back on the phone with my cardiologist. Honestly, at that point, I was getting scared. I called my mom and told her something was up and asked her to pray.
My doctor put my cardiologist on speaker who proceeded to tell me my heart was racing pretty fast and my rhythm was irregular. I started praying under my breath and asked how serious it was. My cardiologist told me he wasn’t able to answer that question because he’s not there and instructed that I go to the hospital with a trustworthy Truncus Arteriosus colleague of his. Because he was four hours away and his colleague was only two. I was worried and teary-eyed at that point. He told me because my heart was racing and irregular.
I had three choices:
🔹️1. Go to the local Er and have them transport me via ambulance.
🔹️2. Have someone drive me as soon as possible. 🔹️3. Do nothing hope it stops but he’d rather I not risk it.
I asked if I would need surgery. He said he was pretty confident it could be handled via medication. So I pulled myself together and went to tell my parents what was going on, only to find my dad already in the waiting room.
I chose option 3. I convinced my dad to meet me at home then we’d drive the two hours there. Honestly, an Emergency Room Ambulance transfer would’ve taken longer and been a bigger hassle for everyone. My mom opted to stay home because it was already 5pm and she knew dad would probably stay the night. Someone had to watch the dogs. Even tho she wanted to be with us, I told her it was fine. I reassured her that I didn’t feel bad in any way, I was just tired. When we got there it was close to seven-thirty pm. The check-in and triage went smoothly because my cardiologist had called in ahead.
At around midnight I was still in the Emergency Room, they gave me an IV for fluids because I was dehydrated and drew lots of blood. After running a bunch of tests. The doctors on call told me I had a flutter in my upper arteries and my heart rhythm was out of wack. They gave me some medicine to see if they could calm my heart down and wanted me to stay overnight. I was really nervous, something like this happened to my dad a few years ago after a heart attack and he ended up needing a defibrillator implant. They reassured me I wasn’t having the same issues as he had.
I found reading my Bible out loud calmed my heart a bit which was very good. My rhythm went from dangerous to not so good. Honestly, I don’t read my Bible as often as I should. Yet, it goes where go and where I sleep always! I find having my Bible close, especially at night gives me peace.
They soon sent me to a room and gave me a heart monitor to wear. (I posted pictures below) All night long they were coming and checking my vitals. I barely slept, I was praying non-stop, and reading my Bible.
The next morning after running more EKG tests and taking more vitals, they realized my heart rate was not changing and my rhythm was not getting better. When they first told me I had a flutter I thought they meant a generic flutter. I’ve had PVCs before, due to my odd heart so I really didn’t think anything was going on.
(PVCs) are -Premature ventricular contractions: extra heartbeats that begin in one of your heart’s two lower pumping chambers (ventricles). These extra beats disrupt your regular heart rhythm, sometimes causing you to feel a fluttering or a skipped beat in your chest.
Apparently, A flutter stands for Atrial flutter – Your heart misfires its electrical impulses, bringing on an irregular or fast heartbeat in the upper chambers of your heart. Making it to fast or to slow. To slow is more dangerous. PVCs and A-Flutter are common for CHD (Congenital Heart Defect) people. A Flutter is different from Afid which is what my dad had among other things.
Around 11 a.m. they came in to discuss a plan. Really – I didn’t have an option. If I wanted my heart rhythm to be good again without surgery of sorts. I had to agree to their plan. They would do an ultrasound, a TEE, and if all good tbed shock me via a defibrillator.
Around two pm they arrived to do an ultrasound- (image using sound waves to produce pictures of the inside of my heart externally.)
Then they prepared me for a TEE (-A transesophageal echocardiography. Which is a test that produces pictures of your heart. Using high-frequency sound waves (ultrasound) to make detailed pictures of your heart and the arteries that lead to and from it. Unlike a standard echocardiogram, the echo transducer that produces the sound waves for TEE is attached to a thin tube that passes through your mouth, down your throat, and into your esophagus. Because the esophagus is so close to the upper chambers of the heart, very clear images of those heart structures and valves can be obtained more detail than a standard echocardiogram can give them. The sound waves are sent to your heart by the probe in your esophagus that are translated into pictures.) I was escorted to a small room after and I was given me some liquid to gargle to numb my throat, and some to swallow so they wouldn’t damage my throat. The anaesthesiologist used to be a nurse for children with Congenital Heart defects and she was talking me through it with great patience. This test had to be done In order to make sure I had no blood clots in my heart. I got panicky when my throat went numb. I thought I wasn’t breathing. (Remember, I went in sick with sinus issues, and was breathing through my mouth mostly.) The woman reminded me I had oxygen on and it was currently at 97%. She then gave me a little sedation to calm me down. While telling me that it is quite common for people to feel that way. (I wondered if that was true tho.) When I was able to swallow again, my throat still numb, I told her. She said good, and that she could see the cardiologist coming. He introduced himself, told me the plan, asked me if I was good. The next thing I knew I was waking up a couple hours later. I’m pretty sure they had said that they were going to keep me mostly awake for the TEE, but I guess they were worried I couldn’t handle it. Thus, they put me completely under. I won’t lie, I’m glad they did.
While I was sedated. They didn’t see any clots and went ahead with shocking me. Which put me back in my normal sinus rhythm and my heart rate is mostly normal now. So I was told.
My throat was sore from sinusitis, but after that, numbing stuff ect it actually felt better… My back and chest were a little sore the next few days but only because they did the defibrillator shock to reset my heart. I was in the hospital a total of five days and six nights. All the while they closely monitored me and searched to find a bata blocker that would work on me.
I’ll admit it. I cried a several times when I was alone, due to fear of the unknown and known overwhelmed me. I was also subpose to be going on a big trip. It was important to me for various reasons. The biggest reason tho was mainly to see my man and meet his family. They had told me I’d be able to still go. I shouldn’t be in the hospital more then a day. Obviously that wasn’t the case. I’ve been wanting to go on this trip for years… I am not exaggerating. Something was always getting in the way tho. And now I was was was in the way. That was one of the biggest reasons I was upset. I sad I had to cancel / postpone the trip yet again. I had no choice, and no I dea when I could go again tho. They said I shouldn’t be flying for at least three months. Thank God I purchased a ticket with insurance. Even tho I was finally getting better. I was heart broken.
When I couldn’t sleep or relax. I’d flip through my Bible and read random passages writing down anything that stood out or encouraged me. Like- Mark 5:36 “Daughter, thy faith has made you whole, now go in peace.”
I was an IV blood thinner, not heparin. I don’t know the name (I’m allergic to Heparin and Warfarin. It is genetic and rare… I posted info and links below.) Along with my Coumadin just as a precaution.
I was later given a shot like ENOXAPARIN (LOVENOX), DALTEPARIN (FRAGMIN): <A Low molecular weight heparin injectable anticoagulant blood thinner used for both the treatment and prevention of clots. They are produced by chemically breaking down heparin into smaller-sized molecules. But something newer instead, but non-heparin based.>
Called: FONDAPARINUX (ARIXTRA): Fondaparinux is a synthetic blood thinner, acting similarly to low molecular weight heparin. It blocks the clotting activity of a blood-clotting protein (factor X), and it is administered via an injection under the skin once daily. Because at one point my vain blew from the IV leaking into my skin. I also had bruises all over too from all the blood draws they were required to get. I have small picky veins from being poked since I was born and often they like to be difficult…
My whole arm up to my elbow became an ugly dark purple for almost a week… The pictures make it look better than what it really was. They had to keep an Iv in me so they switched arms.
One of the last mornings I was there, I felt bad because I scared a phlebotomist or Iv tech when I was half asleep by being a brat. I haven’t had the best expeinces in my medical life and sometimes PTSD is a b…… I made sure I apologized and explained I wasn’t fully awake and was thinking something else was going on at the time… I think after that they were a bit scared of poking me tho… However, most the time I tried to stay positive and in a cheery mood. They were one of the best hospitals I’ve had to stay at ever.
Again, I posted links below for those of you who wanna know more…
I usually don’t talk about what goes on with me anymore. I was really shaken up. I’ve been so good for so long, with minor scares. I put off going to the doctor mainly I guess because, I was afraid of what they may say. I was also worried about my family and all we’ve been through lately. I didn’t wanna cause them more stress.
I asked so many questions. I especially asked them about a cause or trigger that could’ve avoided this happening. He said there really was none, it’s just something that happens to congenital heart patients; especially those with Truncus Arteriosus.The doctors said A Flutter can be pretty common for Trunkis Arterosis and other CHD patients. If not caught in time it can really damage your heart. I really didn’t think anything of it because I had no pain and panic attacks are common for me. It was a really scary realization of what was going on within me. It’s a good thing they caught it before it got worse.
Please take care of yourself and if something doesn’t feel right or it is out of the ordinary, make sure you talk to a doctor.
Other than postponing my travel plans some good came from the hospital stay. I always believe good can come out of every situation, even bad ones… I was able to meet some wonderful people including some “Zipper Sisters ” from Facebook. They were such a blessing to me and a nice distraction. (Again I had pictures but they seem to have poofed I will add them when if I can find them…)
I am doing so much better, just getting used to the new medication. I see a big improvement in my activity, abilities, and sleep. I’m still a bit sore and my arm is finally starting to look natural again. I am still shaken up from this experience and having issues sleeping alone at night like when I got home after my second coma….
With congenital heart defects, you need to see your cardiologist regularly. I was told I may never have another attack again, which I pray will be true! I’m going to make sure I take care of myself. I’m now on Metropol the Beta-blocker and beginning to feel like my old active self again for the most part.
God bless you all and thanks for reading and supporting me!
╰ღ╮ Amy Jane Sandberg╰ღ╮
🤔Someone asked me what my goals are for this month. after thinking about it for a few days here is my answer…. I’m going to keep it simple.
〰️My goals for the next few months〰️
📌 Write for at least two hours a day.⏳📝📇💻
📌Finish Spring / Summer cleaning.🛍🍃🛢
📌Finish A book or several books.🧝♀️✍🗂📚
📌Keep in contact with people💌💕
📌Work on Blog and A Novel Life LLC.
😉 Last but not least -Make you Smike!
╰ღ╮ Amy Jane Sandberg╰ღ╮
Hello My Loyal Friends and Family, Lately Life has been for me like a Twister and I don’t mean the game. I mean the big scary Tornado kind. Fasten your seat belts, your about to enter the vortex of Life! Some Good, Some Bad. I don’t know where to start… It guess it all started when I moved up north! I had to lean to live out of a suit case, I had to lean not to plan so much. That was hard, I greatly enjoy planing things, I lost a love and gained a stronger better love then I could have hoped for! I had a small stroke. Fiances have been tight but I have been lucky enough to be blessed enough to still do things I enjoy, like get an Ice Tot-ti and a slice of quiche on the weekend at the local cafe. I’ve had several emotional break downs, while working on my book and at other times, which I highly regret. Among other struggles, life has been mostly good. God is always Good! Last month I went to Florida, My dad and I drove for five days across the USA, to see my sister, her son, her boyfriend, and other people we care about. It was a great trip, though I missed a few planned events with some people due to schedule differences. I was so happy to see my family, I miss them so much, though I don’t think I showed it well.. My nephew is getting so big so fast! My sister has some room mates with her right now and they have a son who needs a lot of attention, and is cute as a button. I wish I could have adoped him. He needs a good foundtion of rules and love. I would have loved to be the one who gave it to him, since his parents are lacking in that area. However they do seem to care about his well being. Where they lack my sister has taken over and is doing a great job caring for him when they don’t. I am so proud of her. She is a great Mother! I also got to go to an awesome drive through zoo with lots of unique animals that one can not see at most zoo’s. We had a white rhino stalk us and at one point we worried he would ram our truck! EEKK! Thankfully he decided to go by with out a scratch. We fed giraffes, man were they cool!!! I wanted to take Cupid home, he was such a lover!! ***SPOILIER FOR ZORRO THE DRAMA*** I got to finish the Disney Zorro series with a beloved friend! I love that Zorro!! (hums the them song, he marks them with a Z! ) He had some awesome outfits, moves, I really loved most the characters, especially Zorro, Bernard, Sargent Garcia, and His loyal friend.. I didn’t care to much about the sudden ending, I had hoped he would have settled down with a woman……. I guess he Knows that he is mine ;p (Just Kidding) I will look into it latter especially the books.. Besides The Xmen, Spider-Man, and Superman!, He is one of my favored hero’s! I also went to Florida to get my first Dog. The family has had dog’s before but this one is all Mine. A female, A Pure, Blue Harlequin Great Dane, with one blue eye and one gold eye. My parents own her half brother, that part was not planed. I fell in love with her before we knew the blood line. She is a hand full. She is headstrong, very very smart, sneaky, a climber, and has a attitude, but she is also sweet, playful, loving, and great with children, and other pets.. She is a real gift from God. She has a real way with people too.. It is hard to stay sad with her around, I call her my little healer! I don’t know how I made it with out her. She is growing so fast too! Lily Belle is about 15 weeks now, about 40lbs, and is up to my knees already.. I’m 5 feet and 1 inches tall by the way… Thankfully she is now mostly house trained, at least at my house! ;p Did you know puppy poop smells much worse then a baby’s dirty dipper… EWW!! It took us 7 full days to drive back to Washington!! Sheesh!!!! We had to avoid snow storms, my Nitro does not have snow tiers, and is not a 4X4. On the way back home we saw my other brother and his girlfriend, one of my dearest friends with her family including my god children. I was so happy to see them! I wish they lived closer! I will make an effort to not wait so many years next time!! I got to taste the great salt lake flats, and man was that good salt! It reminds me we are the salt of the earth… Says the Bible.. we saw a huge tree farm that went on for about 15 miles and probably covered over 1000 acres from baby to adult trees! It was a unique site to behold! We stopped at my grandma Nanna and Baca’s house for one night and got to experience my first snow of the season there in my birth town. It was amazing! I am so thankful for that!!! We also stopped at a Cherokee town, and I got to learn more about my heritage. Along the way we went through: a few small snow storm’s, a sand storm, salt smog, city smog, saw a coyote run across our path, saw lots of: Antelope, Buffalo, Deer, and lots and lots of cows… Not including the road kill of: frets, beavers, skunks, badgers, coyotes, foxes, Porcupines, Muskrats, nutrias, bob cat, a lot of some kind of animal that was a ball of fur kind of like a big hamster not sure what it was, and much more…. It really saddened me to see so many dead and that I saw a wider verity of dead animals then I did live ones!! http://roadkill.michaelgeraci.com/ here is a site of some of what I saw, it is not for the queasy to look at… Next time I think I wanna take a train! When we finally got home, we had to a lot to do especially me, I had to finish settng up the guest room / office, and other things around the house before the holiday visits began…. I was all excited and motivated to work on on my books, when I got done with thr chores a few days latter only to find out my free word trial had worn out. Boo.. Two weeks latter, For thanksgiving my other sister with her husband, and other brother with his girlfriend with his children our other nice and nephew. (Yes I have 4 siblings, there are five of us all together.)Came with five dogs all together and nine people it was a mad house.. Yet it went much better then any of us had hoped. It was very hectic, but the time together seemed to flow nicely by. Now every one is gone and I am left alone once more at my house, with a sink full of dirty dishes, a bunch of torn peppers around the house, and Christmas around the coroner… My head and body feels like a whirl wind of emotions, pains, aches, thoughts, and it is all making me dizzy… I can’t believe how much has happened this year, with the move, getting a story published, my new house, ect.. It feels like it happened so fast and at the same time this year feels like it has been several years in the making.. It has been one struggle and blessing after another!! By the way my sister got me office professinal from work, but now she can’t find th code. I pray she finds it soon I’m itching to write!!! ;p I love you, Be safe, God Bless you all! ~Amy Jane